Update on all going on with Brady
Lots to report on this week. First off, I am excited to say that Brady finally seems to be transferring his use of pecs to a nonfood or drink item! This weekend (a couple times) he brought me the picture of his computer game when I was sitting at the computer! That is huge for us, because even though he has always used pecs for food and drink, he hasn’t ever wanted to use them to request anything else. I put some pictures below of Brady playing the game he requested...you’ll see how much he enjoys it!
On the biomedical front, we have 2 more weeks until our follow-up appointment with Dr. DeMio, but the test results are rolling in now. So far, we know that (1) Brady has a very high amount of tin in his urine (2) Brady has strep in his gut, (3) Brady tested insanely high for a couple types of yeast and (4) Brady has an obscene amount of hippuric acid in him. There are still several results I don’t know yet, but that is what we are dealing with so far. Its weird, because you want something to work on so I thought I’d actually be relieved to see there is something off balance inside him...but instead, I look at him and want to cry because he can’t be feeling too good inside with all that going on. I am anxious to get started on clearing up his gut and making him a healthy little boy. I just pray it helps his development along the way. We have been doing a few supplements over the last couple weeks, including B12 shots. We’ll keep you posted on that, but so far so good, lots of babbling...help us pray for the words to come!
As for potty training, there have been ups and downs, but overall I think he is doing pretty well. I won’t lie, his therapists (who are amazingly helpful daily in this potty training process) have been peed on more than once, but he is getting the hang of it. We average about one accident a day, but there have already been a few accident free days! He doesn’t have the initiation step at all yet, but he seems to be trying to hold it until we put him on the potty (we are on a schedule), mostly I think because he doesn’t like to get his underoos wet...he LOVES to wear underoos!!! Sometimes he actually protests putting a diaper on for naptime or bedtime now. I’ve been excited to see him take an active role in getting dressed now...he can put on his own underoos and shoes (those are his 2 favorite pieces of clothing), and is very helpful with his shirt and shorts now too!
We are in the middle of our MFE with Olentangy Schools, which will be completed in August before his 3rd birthday in September. Friday the school psychologist came to observe Brady in our home, and after the show he put on, I have no doubt he will qualify for services . Friday was the worst day he has had in months, and inexplicably. After his nap he was a little better, but his morning class at Little Gym and his morning ABA session were a huge struggle. Since then, he has been back to his adorable little self. I just wish he had the words to tell me what is going on when he has a day like that.
What else, what else...our waiver is up and running, we are beginning to take advantage of all that his medicaid card can offer us, and I am still learning about the autism scholarship. We had to say good-bye to Stephie, Brady’s speech therapist since we entered Help Me Grow a year and a half ago, but he starts with a new lady tomorrow...let’s hope it’s a good match! We are taking a break from OT, just until he turns 3, so we will be back up and running with that in September. We are going to start trying craniosacral therapy in the meantime to see how Brady responds to that. So much going on, we visit a new pediatrician next week, are planning for his start in a 2-day preschool this fall, and we are really looking forward to the big softball fundraiser Jerod and Mindy are planning - “Media Softball Showdown 4 Autism”. Mark your calendars for July 13th and see Jerod’s previous blog for more info there.
Well, we are off to COSI in a couple hours for the first time in months...I hope Brady is still a big fan...I know I am! Happy 4th to you all, travel safely!
