Ups and Downs… A week on the Spectrum
Ups & downs this week…
The last week has had it ups and downs for Brady. He has had some
great moments in his IBI therapy...he is doing amazingly well at his
people program! He loves to see the pictures of his family and
friends and is learning all the names so quickly. When his speech
comes, I believe he will be able to add that piece to the puzzle so
easily! He continues to make progress with his pecs, requesting milk,
juice, pretzels, fruit, nutter butters (the list goes on) every chance
he gets! We also visited the preschool he will attend one day a week
in the fall, and he did very well for a first visit. He will be in a
class of 8-10 kids at a church preschool. This church has been
amazing to work with so far, allowing us to send an aide with Brady,
something they’ve never tried before. I have the highest hopes for
Brady this fall! He has been working very hard in all his therapies,
and this week I’ve been able to see and hear the progress a little
better.
There have also been some pretty big downs this past week. Brady was
not himself for a couple days, and I can’t describe it much better
than that. I know my son is trapped inside his body, not able to
express and understand as he should be able to at this age. But he
was even more so this week...almost zoning out at times, or becoming
incredibly upset, jumping and crying uncontrollably for no reason I
could see. This has been one of the hardest weeks of autism so far,
mainly because I have been so scared for him. We can teach him and
teach him through ABA and speech and OT and preschool, but if
something inside him is off, we just can’t seem to reach him. It is
for this reason that I am so thankful we are about to embark upon the
biomedical journey.
In just a few weeks, we have our first appointment with Dr. Demio, the
DAN doctor here in Columbus. I am so thankful we live in this great
city with access to all the best resources...Children’s Hospital’s
Autism Center...Dr. Demio’s biomedical office...and of course Brady
would throw in the splash pads, COSI and the zoo! We also have the
most amazing ladies working with Brady, they have become a part of our
family. They too saw the differences in Brady over the last week and
were just as concerned as I was. I was so stressed out over what was
going on inside my little boy...but I have new hope now considering
what might be possible by adding biomedical treatment to Brady’s
regimen. I feel we need to clear Brady’s mind and body so that he can
better concentrate/understand/learn from his ABA therapy. I am
excited for what might be next...I am getting my hopes up for a
breakthrough by the end of the year...let’s cross our fingers that his
next steps will be big ones!
I don’t know all there is to know about biomedical treatments yet, I
am still reading and researching, and I know that many people are
skeptical...but I have seen too many kids who made incredible strides
by these methods to not try the same for my Brady. I am eager to
begin one step at a time, and see if we can bring my little boy out
and continue to teach him how to learn. I can’t bear to see him lost
inside his adorable little body much longer...we’ve got to bring him
out...and I’m going to give him all the hugs and kisses he can take as
we go!
